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Radiation Research Program |
Centinela Freeman Regional Medical Center Memorial Campus
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Grant Staff Contact Information Principal Investigator Executive Secretary/Administrative Assistant Grant Administrator/Manager Community Educator |
Primary Partner Institution University
of Southern California Co-Investigator Secondary
Partner Institution(s) Co-Investigator Co-investigator Allen
Fremont, PhD
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The Urban Latino-African American Cancer Disparity Project (ULAAC Disparities Project) links Centinela Freeman Regional Medical Center, a community hospital in service of a high need/low resource urban community (45% Latino, 45% African American) with major research institutions: University of Southern California, University of California San Francisco, and RAND to create a permanent clinical trials infrastructure. This collaboration generates unprecedented opportunity to reduce disparities in access to radiation oncology, cancer prevention and translational research trials as well as demonstrate an intervention model with potential application to similar urban communities throughout the nation. The Project builds and stabilizes independent and collaborative clinical research capabilities of Centinela Freeman with its partners and improves ability to extend access to radiation oncology clinical research to African Americans and Latino persons with cancer and at high risk for cancer. The Project uses a cultural and language appropriate health Educator to outreach to potential patients for Project-sponsored clinical and prevention trials, explain the benefits of trials participation, and identify and recruit trials participants. The Health Educator identifies potential Project patients through the 383 primary care physicians in the Project's target service community. Outreach through primary care physicians builds on established patient and physician relationships that can, with Project interventions, overcome patient reticence and other barriers to clinical trials. The assignment of patients to Patient Navigators facilitates the care process by improving coordination of care functions, which will in turn improve the quality of the medical interaction and increase enrollment and retention of patients in clinical trials. The Project demonstrates the use of a Health Educator and Patient Navigator facilitated interventions to recruit and encourage African American and Latino persons with breast or prostate cancer or at high risk for these conditions to participate in and successfully complete radiation oncology clinical trials, a partial breast irradiation trial, cancer prevention trials and certain translational research investigations. A crucial Project component is systematic evaluation. The evaluation assesses the needs and concerns of stakeholders and provides ongoing feedback and suggests alternative approaches.
Centinela Freeman Regional Medical Center
Patient Navigators will provide
individual assistance to reduce disparities caused by factors
such as adult illiteracy, inadequate English language skills,
immigration and other legal issues, misinformation about
cancer, fatalism, fear of being a "guinea pig," fear of exploitation
and fear of harm from "experiments," and lack of case-managed
guidance and follow-up assistance to assure continuity of
care. The
Project demonstrates use of Patient Navigator-facilitated
interventions to recruit and encourage African American and
Latino persons with breast or prostate cancer or at high
risk for these conditions to participate and successfully
complete radiation oncology clinical trials. Once referred
to the Memorial Campus Cancer Center, every patient will receive individual
assistance from a specially trained culturally and linguistically
appropriate Patient Navigator. The Patient Navigator's role
is both global and personal to ensure that the patient's
medical and social needs are addressed. Patient Navigators
will help patients to overcome barriers to access including
but not limited to: 1) lack of transportation, 2) confusing
clinical trial eligibility criteria, 3) service discontinuities
that can occur with unaided referral to specialists, 4) coping
with the psychological shock of cancer while also having
to make decisions with quality of life consequences, 5) scheduling
and keeping multiple appointments, and 6) complying with
protocols that can require repeated treatment visits. These
impediments can be especially daunting for socially isolated
persons who also lack someone who can advocate for them when
they are unable to do so themselves.
Centinela Freeman Reginal Medical Center will mobilize and train a group of Patient Navigators, whose purpose is to assist program patients in overcoming any and all barriers to streamlined, expeditious medical care and, where applicable, barriers to entrance into current clinical trials. Patient Navigators will be individually matched with patients based on cultural, interpersonal, professional and peer characteristics with the object of maximizing the patient's comfort and trust in the navigator and the care process.
Simultaneous with the mobilization of the navigator team, the Project's Health Educator will outreach to community groups, physicians and patients to educate them about breast and prostate cancer and/or to inform them of the availability and purpose of the navigator program. The Health Educator will also provide information about both the need and opportunity for inclusion of Latino and African American patients into pertinent clinical trials.
Contact Information
Community Health Educator
Deborah Karaman, MPH
Phone: (310) 674-7050 ext.3489
Email: debbie.karaman@centinelafreeman.com